See how Papou's Mouse is making a difference in the childhood cancer world.
My son Jace Black was diagnosed with a condition called Neurofibromatosis Type 1 (NF) at around the age of 18 months. NF causes tumors to grow on the end of the nerves in the body. At age three (3), after an MRI, they found a low grade gliomas on Jace’s brain stem. We were told he needed chemotherapy for sixteen (16) weeks. We were devastated and did not know where to turn. The tumor was inoperable and he needed chemotherapy.
When he began treatment, we did seek out resources and was blessed to come across a few that were wonderful. At the end of treatment, we were introduced to Papou’s Mouse organization. They really just sort of wrapped their arms around us and took care of our family. They blessed our family quite a bit with our family dinner to celebrate our end of treatment, gifts for the boys, and most importantly support.
Luby would text me, ” How are you doing? What’s going on? How are you feeling?” because I don’t think that most people realize that just because treatment is ending doesn’t mean that the challenges go away or the anxiety goes away. I now have what we would like to call “scanxiety”.
So just because the end of treatment happens doesn’t necessarily mean the support needs to go away. That was something that Papou’s Mouse the organization did wonderfully.